Primary antibody deficiency: The impact on the quality of life and mental health of affected children and their parents

Aim To evaluate health-related quality of life, mental health and treatment-related stress responses in children with primary antibody deficiency both their parents. Methods Children parents completed the standardised questionnaires Pediatric Quality life Inventory, Strength Difficulties Questionnaire Impact Event Scale. Parents also regarding own life. The results were compared to those healthy children, kidney transplanted remission from acute lymphoblastic leukaemia. Results reported a poorer They children. Mothers mothers but comparable chronically ill similar as general Norwegian population. Treatment subcutaneous immunoglobulin infusions at home is generally well tolerated, some report severe stress. Conclusion Primary has significant impact on affected Patients should be identified helped.